Mark Hughes Foundation

Together in Dry July 2026, you helped the Mark Hughes Foundation raise an incredible $85,968, which will provide practical information and support to people diagnosed with brain cancer across Australia.

The MHF Patient Support Pack program, including the Survivorship Diary, will be supported through the funds raised. These resources will provide trusted information, practical guidance and a way for patients to track their treatment journey, helping ensure people diagnosed with brain cancer can access meaningful support wherever they live.

"Thanks to the incredible support of Dry July participants, we’re able to continue expanding our Patient Pack program, ensuring more people diagnosed with brain cancer receive practical support and comfort when they need it most.

A brain cancer diagnosis changes lives in an instant, and those first days and weeks can be overwhelming for patients and their families. These packs provide trusted information, helpful resources and a reminder that they are not facing this journey alone. Every Dry July donation helps us reach more families across Australia, offering hope, connection and support at one of the most difficult times in their lives. We are incredibly grateful to everyone who made this possible."

Sharyn Rogers, Operations Manager Mark Hughes Foundation

I have always been a supporter of MHF, buying beanies during the Beanie for Brain Cancer rugby league rounds, never imagining how personally meaningful this cause would become.

In November 2024, my younger sister Lesley received a diagnosis of Grade 4 Glioblastoma. Following her initial surgery, the prognosis was devastating—just 12 to 18 months to live. Our family’s world was instantly upended. At 53 and having just become a grandmother for the first time through her only daughter Carlie and her wife Lou, Lesley felt her life was finally whole with the arrival of little Tilly.

Lesley and I are two of five sisters, affectionately known as the “Ryan girls.” Together with our wonderful mum Denise, we made a pact to create as many cherished memories as possible. We’ve made the most of our time: climbing the Harbour Bridge with Lesley’s partner Nathan, enjoying family weekends away, enjoying sister trips with pampering, and even plotting tattoos—always seeking new adventures.

The outpouring of love and encouragement Lesley has received has been extraordinary—not just from family and friends, but strangers too.

The Mark Hughes Foundation was the first to extend support after her surgery, sending a care package that meant so much. Lesley has always been dedicated to the foundation, collecting every beanie since the campaign began, especially after previously losing a friend to the same terrible disease.

Lesley’s resilience and strength continually inspire us all. Supported by an excellent medical team and a loving network, she faces the daily challenges of this disease with courage.

We are determined to stand by her, and we will not give up this fight.

Simon’s journey with brain cancer was devastatingly swift, yet his warmth, courage, and love for his family left a lasting impact that can’t be measured in words. Only a week after his diagnosis, Simon’s wife Heidi shared their story with the Mark Hughes Foundation, holding onto hope amidst the shock and grief. Just one week later, Simon was gone.

Simon was a beautiful 53-year-old (a young 53) who was always trying to be healthy and stay fit. He was a friend to all, and everyone always loved “Simo.” As a boy, he supported St George, but that changed once the Knights started in Newcastle. He always went to a few games each season with his mates, and this year we wanted to go as a family to support a family friend playing for the Knights, but Simo’s health was just not good.

You see, Simo had been struggling with Lyme Disease for the past three years and had been trying everything to get rid of it. It was getting worse, so we started to look into treatment over in Germany, but it is very expensive. Now we know those changes we started to see mid-year were probably the brain cancer.

Simo was a surfer; he loved the beach, and if he wasn’t in the water at least once a week it became evident that he needed his saltwater fix. His favourite breaks were Bar Reef and Nobby’s Reef. His favourite surfers were Mark Richards, Mark Occhilupo, Owen Wright, Jack Robinson, Mick Fanning, and Kelly Slater. We had been going to Rainbow Bay (near Snapper Rocks surf break) over the past four Easters. Simo was stoked to see Mick Fanning and Kelly Slater out in the surf and to meet Occy, who actually lives in the apartment building we stayed in. Occy was always up for a chat, and Simo was so excited that he got to introduce our son to one of the best surfers of all time.

Simon was an amazing husband and father to our 10-year-old son, Newton. Newton adores his father, and Simon was born to be a dad. Simon was always outside playing soccer, on the trampoline, or in the spa playing with his little Newty Boy! The saddest part about all of this is that Newton’s world has been completely shattered and changed forever, and it breaks our hearts. We tried to protect Newton by keeping life as normal as possible. He knew Daddy was finding it difficult to find the right words to say (his tumour was in his front left lobe) and that doctors had done tests on his head to find the right medicine for him. We never thought he would be gone before he could even start radiation or chemotherapy.

Simo was always a loving and supportive partner and husband. We have been together 20 years and married for 12 years. In 2016, I decided to retrain and started a Masters of Education to become a Primary School Teacher. He was so supportive during this time when I was studying, especially as Newton was so young. In Term 2, 2019, I was doing my final practicum for my Masters and on 12th June (my mum’s birthday), our lives were derailed with the news that I had breast cancer — the nastiest and most aggressive type there is, Triple Negative Breast Cancer.

Just when life was meant to start to get easier, I had to have surgery, chemotherapy, and radiation. I tried to keep things as normal as possible and even worked while on chemo, much to my oncologist’s annoyance, as I needed to know that I could be a teacher prior to graduating that August. I then started casual teaching while I was doing radiation. I don’t know how I would have gotten through it without Simon.

I am now nearly five years post my treatments, and I will never forget when my surgeon said to me, "If you hadn’t found this early you would have been dead by 50." This still sits with me, especially now with Simo’s diagnosis — if I hadn’t caught it early, I hate to think what the outcome might have been for our son Newton.

Simon was a Geologist by trade and had worked in mines in NSW and WA. He worked for the NSW Department of Planning and Environment since 2005. He started in the Mine Subsidence Board, moved over to Minerals and Geological Survey, and later decided he wanted to get out of mining, so he moved to Fisheries and was working as a Senior Project Officer in Water Assessments.

He was still working the morning before we went to the GP on Tuesday 8th October and was reluctant to go as he had so much on at work, helping to cover while his manager was on leave. Who knew life could change so quickly after a 9:30 am GP appointment and then a 12:30 pm CT scan before being told that we needed to go to the John Hunter Hospital immediately?

The neurosurgeons thought it was a GBM, Grade 4 (a frozen section was taken on Friday 11th October during a biopsy). They said it was too risky to try to operate to resect some of the tumour as it might leave him with more deficits, like weakness in his right side or personality changes. We were holding onto the hope that radiation, chemo, and Avastin might start to reduce the tumour (5x4x3cm) and help Simon get back to how he was.

Once the pathology came back confirmed as a GBM Grade 4, we went to the medical and radiation oncologists and a treatment plan was in place. We were hopeful of getting Simon past Christmas this year, but the tumour was just too aggressive and took his life after just 20 days of fighting this beast.

Everything now feels very surreal, and we can’t process that Simon is gone. We couldn’t have navigated this journey without the wonderful MHF nurses, Elisha and Sandy — two amazing people who we will forever be so grateful for. We will continue to raise money and fight for a cure alongside the Mark Hughes Foundation, and we will not give up until a cure is found.

Hi, I’m Liz. I’m 37 years old, married to a spunky guy, mother to 3 beautiful children (6, 8, and 10) and I have brain cancer. And I can tell you, brain cancer sucks!

My extended family has had it tough with this disease. My cousin Luke passed away a number of years ago after living most of his life with a childhood form of the disease. Then his brother also had a brain tumour removed recently and my eldest sister Michelle was diagnosed with brain cancer almost 10 years ago too.

My journey with brain cancer started at home on the 10th June 2021. That’s the day I had my first seizure and my world changed forever.

In the lead up, I had been experiencing a large number of minor yet ever increasing symptoms like anxiety, tiredness, losing feeling in my leg, a twitching eye, and generally struggling with life. I’d been trying to get on top of things, but nothing was working. Sound familiar? It sounds just like every other busy mum with a young family, right? I mean, how was I or anybody else supposed to know I had brain cancer!

But then, one busy morning at home getting the kids ready for school, my lights went out. I don’t remember anything for a few days after that, but what I’ve been told is that I was having my first seizure of many. It was a full body, proper brain reset seizure, and I was having it in the hallway in front of my poor kids. And I was having it over, and over, and over again.

My kids went into emergency mode. God bless them, I have to laugh, they got out the medical kit, the Band-Aids, vomit bags, and bandages. All the medical type things that they’d seen us use before and that they thought might help. My kids were my first responders in a long line of people who would save my life that day. Eventually, my son Kayden (8 years) called Dad and told him “Something’s wrong with mum, she’s on the floor”, and Dad (my husband Scot) supposed that I had just passed out getting out of the shower, which I had been known to do. But once our friends and neighbours arrived on the scene to help and realised that something dreadful was happening, everything kicked into gear. Thank you to my kids, my husband, my family, my friends and neighbours, the ambo’s, the nurses, Drs, and all the other hospital staff who saved my life on that first day!

Six days later I had brain surgery to remove a chicken egg sized tumour from the front of my brain. The tumour was so big that it was squashing all the other bits of my brain and sort of putting them to sleep, like when you sit on your hand for too long or wake up at night and can’t feel your arm. All the early indications were that the tumour was benign, which was a relief. However, two days later my world was shattered when the proper biopsy results came back, and I was told that I had a high grade malignant brain cancer. Then a few weeks later I was shattered again when I was told what that really meant. “Glioblastoma Multiforme” … whatever that gobbledygook is. I couldn’t even pronounce it when I was told it. I already knew there was no cure, so I was absolutely petrified. Then they said, “Terminal illness, less than two years on average, but we’re hoping we can get you three”!

At this point, there really are no words to explain the crushing grief, tears, snot balls, and shaking from the inside out that I felt. I wouldn’t have a clue what the doctor said after that. It was like somehow the words the doctors were saying changed in the air between their mouths and my ears and I all I heard them saying was, “you won’t get to see your kids grow up”, “forget about going to their weddings”, “I bet they won’t even remember you”, “your husband will find someone else”. It was my world being taken away from me. Just like someone clicking their fingers. My world was there one second, and the next second it had been taken away.

But I’m a fighter! Four weeks after surgery I started a course of six weeks radiotherapy and chemotherapy. I did everything I could to keep well. I ate well to have the best nutrients in my body and exercised lots to help get the blood flowing into my brain to deliver more of the chemo to the cancer and kill it. The Drs describe the treatment as ‘tolerable’, but I can tell you it’s certainly no walk in the park. I almost made it to the end of treatment but had to stop the Chemo early because it had destroyed almost all my platelets so that I had a big risk of internal bleeding. I was very sick, but I was fighting. I didn’t realise how bad it was at the time, but later my Dr let slip just how concerned they were … something like a change of underwear being in order. I think I might have dodged another bullet there, and during COVID too!

Starting radiation during COVID was terrifying for me as I was all alone in the radiation room. I would lay on the machine with my head firmly fixed down under a plastic mask so that I couldn’t move. Not knowing what to expect, the radiation staff soon made me feel comfortable and Scot was beside me or as close as he could be, even if that meant being in the next room, or waiting in the car due to COVID restrictions. Thank you to my parents who came to our rescue as we still had the kids but now had to navigate daily radiotherapy while being very ill as well.

Since that time, I’ve been feeling much better, but life is so much different. I still have seizures and I still can’t drive at the moment (Grrrr) which means I can’t do basic mum things for my family (Double Grrrr). I take lots of regular medications, I see Drs all the time, have regular MRIs and I take Chemo every month to keep the cancer at bay. I’m up to 18months of Chemo which I’ll take until either my body won’t let me, or it stops working, or until they find a cure, or if I decide enough is enough. Praying hard for that cure!

However, the biggest change to my everyday life is that I can’t think the way I used to. Brain cancer impacts your ability to think because there is this cancer stuff inside your brain getting in the way and mucking everything up in ways that are different for everybody. For me, I struggle with higher level executive functioning like planning, administration and decision making (funnily enough … all the stuff I was really good at! Triple Grrrr). It sounds strange, but I can really struggle to make simple decisions. For example, if I try to plate-up for dinner, sometimes I just cannot work out what food goes on what plate. It is incredibly frustrating! Other things I can’t do anymore is write this story by myself, filter out background noise, prioritise lots of people talking all at once, and juggle different things competing for my attention. All this looks like seizures at family Christmas lunch, or at church, or while out to lunch with my friends.

As a result, my husband does a lot to help look after me and the kids, and I have a support worker come into my home a few days a week to help me do normal mum things.

To get past it all, I have to remember that I’m young, I’m fit, I’m otherwise healthy, I’m fighting, I’m doing well, Drs don’t know everything (Sorry Drs, you guys are great, but I know you would agree), my scans are good, I’m winning, I’m praying and seeking God, I have a great support network, and I have a great family who I love and adore and I WILL be there for them in the future!

A special thanks to the Mark Hughes Foundation (MHF) for giving me the opportunity to share my story and for all the work they are doing to find a cure.

Thanks to my MHF Brain Cancer Care nurses Alisha and Elise. You ladies are tops.

Thanks to my many Drs who give up so much of their lives to help people, like the extra time they spend at work away from their own families, so that I can get some more time with mine. I see your sacrifice.

Dry July funds have enabled the Mark Hughes Foundation to continue supporting all patients and their families across Australia by providing all patients diagnosed with brain cancer a patient care pack, regardless of location.

Every patient can receive a patient pack, including information on the disease, a patient diary and our famous MHF beanie – which is a symbol of hope. No patient or family should have to go through a brain cancer diagnosis alone.

The funds also support the annual Hunter Brain Cancer Forum. The Forum is a day for patients, carers and their loved ones to hear specialists discuss a range of topics in relation to brain cancer. In addition to gaining further information and resources, the Forum helps patients build connections with other patients and carers going through the same journey.