Bowel Cancer Australia

Funds raised through Dry July 2022 have supported the continuation of The Movement - Wellness Beyond Diagnosis, Bowel Cancer Australia’s nurse moderated and supportive online community for patients, loved ones and carers.

With close to 700 members and counting, the closed Facebook Group features monthly presentations by healthcare professionals from across the care continuum, access to resources, as well as facilitated live chats for members to connect with one another. Moderated by Clinical Nurse Consultant Sally, who also has a lived bowel cancer experience.

What patients are saying:

“I can't believe how amazingly supportive this group has been to me. After my initial diagnosis I was overwhelmed and so incredibly scared. I then found this group and even though I’m still navigating relatively blind, more tests and more waiting for results, I am not so frightened because I KNOW I'm not alone. Our journeys are all unique but there's backup and understanding here.”

“Early on in my journey, I found the Bowel Cancer Australia support network. I reached out to the Bowel Care Nurse in the early days and also the Bowel Care Nutritionist. I was so grateful for their advice, especially in those early days when my head was absolutely spinning. I also found the community Facebook group 'The Movement - Wellness Beyond Diagnosis'. This group has been a wealth of knowledge and support and I cannot recommend them highly enough.

Bowel Cancer Australia is pleased to welcome Australia's first dedicated Bowel Care Oncology Social Worker to our Patient Services team, offering further cancer-focused support to improve the psychosocial wellbeing of people with living with and beyond bowel cancer.

This fantastic new service is made possible thanks to a grant from the Dry July Foundation, and all the much-appreciated Dry July fundraisers and donations received.

“Your psychological and emotional health can have a significant impact on your physical health and ability. Social work therefore looks to holistically address your overall health and wellbeing. I am here to provide another part of the scaffold of support around you, helping to uphold you through your bowel cancer experience.” ~ Victoria, Bowel Care Oncology Social Worker.

People living with or beyond bowel cancer and their loved ones can now access this new service anytime via email or by calling Bowel Cancer Australia's free Helpline on 1800 555 494.

What patients are saying:

“Since surgery I have experienced chronic bowel issues which have isolated me from my community and friends. As I live alone with no family support, I have been extremely grateful to Victoria for her professional support in what has been and continues to be an extremely challenging condition. I cannot speak highly enough of the support she has given me.”

You’ve helped fund the continuation of Bowel Cancer Australia’s Bowel Care Oncology Social Worker service, Online Survivorship Community and Resource Hub (Bowel Care Nurse Moderated Facebook Group) and two additional integrated Bowel Care Nurses.

Bowel Cancer Australia’s integrated Bowel Care Nursing program supports the employment of dedicated part-time Bowel Care Nurses in regional communities across the country. Acting as a key point of contact for bowel cancer patients and their families as they navigate the health system in their local area – providing advice, education, support and direct patient care.

“Bowel cancer is Australia’s second deadliest cancer, but when detected early 99 per cent of cases can be successfully treated. We need to be at the forefront of that treatment, helping ensure clients get the best possible care,” says Sunshine Coast Bowel Care Nurse Kirsty.

On behalf of Bowel Cancer Australia, we would like to thank you for your support and contribution to making a positive difference in the lives of people living with cancer.

I was officially diagnosed with Stage 4 Rectal cancer in December 2020. This is my second bowel cancer diagnosis; I was also diagnosed with Stage 1 in 2012.

Nothing prepares you for that feeling of being completely overwhelmed with the fear of what is to come. Will I be alive long enough to watch my son grow up? Will I be on chemo for life? Will I ever get to remission?

Cancer during a pandemic adds another level to the treatment. I spent over 50 days in hospital over the past 12 months, mostly alone due to restrictions.

Many times, I thought I couldn’t do it anymore, the treatment was brutal on my body and my mind. I had surgery complications, went into menopause and now have lasting side effects from the treatment.

But I did it! I made it to the other side of treatment. Three surgeries (including bowel resection, ileostomy and reversal, and removal of adrenal gland and ovaries), six weeks of chemo/radiation, 12 rounds of chemotherapy and a bout of shingles later, I am in remission.

When I look back on what my body and mind went through, I still can’t believe I was able to get through it all.

I am so thankful that my amazing surgeon and oncologist were totally invested in not only treating me with the hope of cure, but to try and still give me a great quality of life.

Cancer can be a very lonely experience, especially during a pandemic. I am so thankful to have had the team from Bowel Cancer Australia checking in on me during both my cancer experiences in 2012 and again in 2020/2021. The practical support of a nurse and nutritionist who understand the impacts of treatment on your life and the Peer-to-Peer Support Network which put me in touch with others in similar situations, really helped me feel like I wasn’t alone.

Since my last surgery, things have progressed well. That’s not to say my life is back to normal, but I am here, I am in remission, and I’m going to try and live my life in the present. I’m enjoying time with my family and friends and trying to make the most of everyday. I will not let my cancer define me!

Despite being the third most diagnosed cancer, bowel cancer patients don’t receive the same level of support as other common cancers.

Described as a 'lifeline' by patients and their loved ones, Bowel Cancer Australia’s telenursing and telenutrition services are addressing this gap, enabling equity of access to personalised care and tailored support nationwide.

Since 2010, Bowel Cancer Australia’s Bowel Care Nurses and Nutritionists have been offering support for patients and loved ones through the charity’s Helpline and Peer-to-Peer Support Network.

Thanks to the continued support of the Dry July Foundation, Bowel Cancer Australia has been able to further expand our Bowel Care Nurse and Nutritionist Programs. Increasing the capacity of our Patient Services team, to meet the growing demand for these vital services.

Serving as a constant, dedicated point of contact for the many bowel cancer patients who utilise the charity’s telenursing service nationwide, Bowel Cancer Australia’s Bowel Care Nurses offer support during and after treatment. As well as assisting patients, family, friends, and concerned members of the community by answering questions about bowel symptoms, treatment options, or how to support a loved one affected by the disease.

“Bowel cancer patients are often faced with unique challenges and their journey can vary greatly from other cancers. Leading many to believe they have ‘the wrong cancer’,” says Bowel Care Nurse Tammy.

People affected by bowel cancer face multiple nutritional challenges, including being unsure about what to eat, diarrhoea, appetite loss, and changes to taste and smell.

Yet they receive little or no nutritional information following diagnosis and treatment.

Bowel Cancer Australia’s uniquely qualified Bowel Care Nutritionists, help to address that need by providing guidance that’s practical, sustainable and evidence based.

“A diagnosis of bowel cancer will involve a change to diet and lifestyle and your new bowel habit might be hard to come to terms with,” says Bowel Care Nutritionist Janet.

"Families, friends and carers also require support and practical advice to assist in meal preparation when caring for a bowel cancer patient," Janet adds.

So as to provide further cancer-focused support to the growing number of Australians affected by bowel cancer, Bowel Cancer Australia is currently recruiting for Australia’s first dedicated Bowel Care Oncology Social Worker.

This unique new role will help to reduce anxiety and distress, and increase feelings of hope and empowerment, by assisting bowel cancer patients in learning new ways of coping, providing practical information about available resources in their community, and improving communication with their medical team and loved ones.

Bowel Cancer Australia’s integrated Bowel Care Nursing program continues to expand, supporting the employment of dedicated part-time Bowel Care Nurses in regional communities across the country. Acting as a key point of contact for bowel cancer patients and their families as they navigate the health system in their local area – providing advice, education, support and direct patient care.

“Bowel cancer is Australia’s second deadliest cancer, but when detected early 99 per cent of cases can be successfully treated. We need to be at the forefront of that treatment, helping ensure clients get the best possible care,” says Sunshine Coast Bowel Care Nurse Kirsty.

Thanks to the Dry July Foundation’s support Bowel Cancer Australia can put more bowel cancer patients and loved ones in touch with a Bowel Care Nurse or Nutritionist, where they can receive specialist support from Tammy, Janet, Kirsty or one of the team.

No one need go through bowel cancer alone.